Adjusting her sails: Why? When? How?

 

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So life doesn’t, as we all know, always go as planned.  And it certainly has been a pretty upside down, these days, for us.  So what do we do?  We stop and…  sometimes, depending on the day, I take it like a champ, and roll with it. Or, I just might take a drive, roll down my windows and sunroof like my oldest bro taught me😉, blare some music and scream at the top of my lungs on an open road! Or… go in my room and scream into a pillow. Maybe, I take a “Jesus walk” (where I literally just pace and say his name over and over ’til I calm down. Or, I just take big ol’ breath and ask the Holy Spirit to take over and help me to just adjust my sails.

These days, we’ve been doing a whole lot of sail adjusting to stay on course.   But, so far, it seems to be working.  Can’t say it’s been easy.  In fact, some days I admit, it’s been really hard.  Really hard.  But we’ve felt overwhelmed with graces to keep us going.  I truly mean that.  Your prayers are working.  Keep ’em coming, folks!

#greedyForGraces

It’s been a while since I’ve posted, and I apologize for giving such a huge gap, leaving everyone hanging for so long. But, honestly we’ve been in such a whirlwind, fighting my current fight and juggling, juggling, juggling the life of mama of 5 AND cancer AGAIN (a new one to learn and to have patience as we all learn and adjust to the whole process of managing and learning the routines of this NEW type of diagnosis and all its side effects. Trust me, PATIENCE is definitely a VIRTUE that we’re ALL workin’ on over here!!!) .  But that whole “mama” part is the part I NEVER want to let go of… that I’ve barely had a moment to post a thing.

 

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So where am I with my treatment?

completed 10 whole head radiation treatments in September.  Since, we’ve been allowing the radiation to take it’s full affect.  It’s been interesting.  The side effects of the radiation haven’t been as smooth as just the fatigue that we thought.  Mind has felt a little over active, so the resting and napping that we thought would just be soo easy has been really difficult.  Although, after a recent visit with my radiologist, he said to just “roll with it”.  No stress.  If I can nap, great.  If I can’t, it’s ok.  I’ll can go to sleep early that night.  Either way, better to not stress.  Stress is worse.  Better to not fell like  I’m “losing myself”.  Gosh I love that guy!  Whew!   

So how am I feeling?

Like a many freight trains are hitting me at once in more directions in my body that we talked about in the ER the day that they gave me my original diagnosis of METASTIC BREAST CANCER TO MY BRAIN.   Literally.  Everything from my tummy to needing an emergency urology surgery (for real, y’all!)… From my head to my .. well, you get it, I’ve been through the ringer.  No details, or questions, If you don’t mind.  Sorry to leave you hanging.  I’ll just say this much.  Cancer is a beast and all the meds and estrogen blockers, etc.  leave quite a path of destruction and pop up at the worst possible times.  I mean … worst possible times.  Like, I had to auction of BRUNO MARS TICKETS AND A HOTEL STAY with 3 of my besties (one of which who flew all the way in from AUSTIN, TX to visit only to take care of my 5 kiddos while I was in surgery- one of which was vomiting all over the place!!  TMI?? Well, that just adds to the whirlwind it’s been. And,  my dear friend has been in already.)  But.. we adjusted our sails!  And… deep breath… we’re still here and we still have each other.  Thank God we have each other!  So to answer, “how am I feeling? ”  I’m feeling tired,  a little frustrated, but crazy thankful for my friends and family that I have in my life… And doctors who have taken such amazing care of me.   My surgery couldn’t have gone better than it did.  Thank you, Dr. Winters for seeing me on such short notice. 

obsessively-grateful

How, Why, and When do I adjust my sails?

As of late, I’ve really had to evaluate myself, my situations, and my body on a daily basis.  Some days I wake up and I feel shaken, weak, and in pain. On those days, I adjust my schedule, cancel plans, and realize that this day I need to stay home and rest, rest, rest.  My body is begging me to take it easy.  I call in for back ups on carpool,  help with kids, etc.  

Other days,  I may not feel so fantastic,  but I don’t feel like I want to stay home and sit on the couch either.  I want to feel some sunshine.  I may have been feeling a little down and out too long, I need to be out and about with my family or friends to do something positive that will lift me up and make me happy.  Go make some memories.  Not because I feel so good to do it, but because I know that doing it will be worth pulling myself up from my bootstraps to do it and make it happen.  I know that by the end of the night when I crawl into bed, sore and tired… I’ll be happy I made the choice and be glad I have the pictures to prove it.  I’ll love looking at the smiles on our faces with my family and friends and be thankful I was present for that and not checked out … again, like I have had to be so often when sick from chemo, or whatever else.  That’s why I do what I do.  That is why you may see me at You Night functions, or Trunk-or-Treats,  Weddings, Halloweens,  or whatever else.  Especially,  that’s why you’ll see me at anything in a costume party.  Nothing gets me fired up than an excuse to wear a costume!!!  I’m a costume designer, I can’t help it 😉

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So you might see me out doing stuff like this.. all just because this counts.  This means something to me.  I’m making memories.  Not because  I feel so good to do it. But because it’ll be so worth it, and make me feel so good once I push myself to get there with the ones I love. Get it?

So what’s next

Next, we continue with my monthly infusions and estrogen blocking injections (that is until we find a true cure!  Still praying for that one.  I just know there’s a geeky guy in a velour jump suit in his mom’s basement somewhere working on it right now.  I pray for that dude every day! )   Then, the Monday after Thanksgiving,  I’ll have my Brain MRI to see how many, if any,  tumors are left post radiation and determine if we need the gamma knife radiation machine for the non-invasive neurological surgery to remove any that would still be there.  I welcome your prayers.   I will keep you posted.   Promise.  Now, you just keep your end of the deal and keep the promise to keep me me covered in prayer like y’all have been so good at these past 3 years or so.  We’ve kicked cancer to the curb the last two times.  We’re gonna do it again!  Like I always say… 

GOD’S GOT THIS!

WHY? DO I BELIEVE THAT SO WHOLE HEARTEDLY? BECAUSE…

1- HE LOVED US FIRST.

2- HE LOVES US MOST.

3- HE KNOWS ALL OF OUR THOUGHTS AND CONCERNS EVEN MORE THAN WE CAN CLEARLY THINK IT THROUGH OUR SELVES.  SO… WHY WORRY????  SERIOUSLY.

LIKE I REGULARLY POINT OUT IN PHILIPPIANS 4:6-7 “CAST YOUR CARES UPON THE LORD AND HE WILL GIVE YOU A PEACE AND GRACE BEYOND UNDERSTANDING!” 

IN OTHER WORDS…

dwbh

 

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No matter which way that is… it just will.  Because the big Guy upstairs has heard our plea.  He knows I have a husband and 5 kids.  He knows our needs.  And I’ve learned now to be SPECIFIC in my prayers.  I’ve learned to ask him SPECIFICALLY to HEAL ME.  It’s ok for me to ASK THAT.  Did you know that I felt bad for all these years to ask that.  I’ve asked for his will to be done, but felt bossy to ask him to heal me specifically.  I did.  But,  after all this time… I finally started verbalizing that.  (About time, right.  Y’all have been doing the heavy lifting, I guess, in the petitioning for my healing.  Thankfully! Sheesh. )

 

So, with that. I’m gonna sign off and get some rest.  I finally feel I can rest my mind now that I’ve gotten this out there.

Whatever time you’re reading this, (It’s about 11pm for me),  may you rest well, whenever the time comes, and thank you for seeing your alarms to pray for those of you who’ve sent me the fb pics and msgs of all your phone alarms set.  That means so much.  Prayers are the greatest thing we could ask for right now.  (Of course, we also have appreciated all of you who’ve been so amazingly generous through the Gofundme account (humbled beyond words), the meal train (would add link, but it’s full to the brim) and the Gift card train (no idea where the link is for this will revise if I find it), all who’ve helped to support the LIVE TO GIVE AUCTION coming up (see TEAM BUNA FB page for updates from Jennifer Block Massett- Coordinator), THE BUNA BASH @ PARIS PARKER on November 17th, and all the proceeds we were able to split with our non-profit (BUNA’S HOPE) through our BOOSTER campaign for our t-shirts, sweatshirts and hats (we’ll do another soon for those who didn’t get any) and the proceeds from HEALTHCARE IN A NUTSHELL that not only educated women and we hope saved lives, but also supported our family and our non-profit, but helped us to buy a kangen water/high alkaline  machine that provides an environment in my body that cancer cells aren’t easily able to survive in for both myself and now my ENTIRE FAMILY! (even the dog!!)   THANK YOU IS NEVER EVER EVER ENOUGH!!!

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All these blessings THROUGH YOU ALL, are proof to me, that in this storm of storms, once again, that HE IS WITH ME

 

I am humbled.  I am grateful.  I am tired.

Thank you.

Thank you.

Thank you.

God bless you, my friends, my village, my TEAM BUNA.

Much love to ya. To all of ya.

*Oh! Let me leave you with another highlight of my week. The most adorable, genuine, heartfelt and creative video from the children of the school and parish that my brother serves as pastor along with dear friend, Paige Bennett💕 @ St.Angela Merici Catholic School in Metairie, La.  Thank you to the Angelettes from the Angelettes (their dance team’s name is the same as our last name!!😉) !🙌💕

(Click link below for their hilarious, adorable, and precious video)

https://vimeo.com/240033609

 

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16 thoughts on “Adjusting her sails: Why? When? How?

    • Heavenly Father we boldly pray for a complete Healing of Elise. Protect her as she marches thru this treatment. Protect her family and let them feel your presence as they go thru their days. In Jesus name! Amen ❤

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  1. Praying, praying, praying! Even my littles are remembering to pray for you whenever we mention intentions! We’re praying for your complete healing, for your family, and for anything y’all may need!
    +Mother of Perpetual Help, pray for us!+

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  2. Elise I pray for you and your family daily. May our precious Savior touch your body and soul with healing. May you continue to fight with the amazing courage that you have. Praying daily for you and your precious family. 🙏

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  3. Thanks for the update! A group from MQP is going to Blesses Fr. Seelos shrine on 11/13 to pray for healing. I’ll include you in my prayers along with Fr. Ronnie. God can handle both of you. 🙏👍 You and your family continue to be in my prayers. 💕

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  4. Oh dear Elise, it was so good to hear from you again as you are such an inspiration of FAITH and are willing to spill your tribulations on each of us as Job did so many years ago! You were truly SEALED (EPH 1vs 13) by the Holy Spirit when you accepted Jesus as your Lord and Master of your life. Now you are looking to that same Holy Spirit to be the HEALER of your physical tribulations. The Holy Spirit is there and will listen to yours and all our petitions lifted up to God on your behalf. You have been so patient all these years and still maintain that close relationship to Him which is all any of us could do as is brings that inner peace knowing we belong to Him.

    We just want you to know that we will be praying for you that the number of tumors will be reduced to zero. If that is not the result, we are praying that the old gamma knife you so vividly portrayed to us will be the healing knife that brings you back to a normal life where you can once again be the wonderful mother to those 5 kids and loving husband who has been there with you through all. Our thoughts and prayers are also for your family and friends as well as all the medical professionals who are your back up. We know He is there walking with you….

    God Bless and heal you and keep your spirit and patience up as you experience a special peace in your heart from God Himself during these difficult times,

    Mitch and Gwen Fournet
    (Angelique’s mom and dad)

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  5. Elise, I e shared your story with my family and we are praying for you. Thank you for being such an example of hope and faith and just being “real” for us. I appreciate that! All our love and support, Alex and Carla Filla (Carla Kavanaugh)

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  6. Elise, I’ve been working with a lady who is a certified rain drop therapist. She works with many cancer patients in pain. It is all natural with Young Living Essential Oils. She will come to your house and do it there. I really believe this could help with some of your pain. It did with mine. I’d be happy to treat you to a session and if it works for you more. Please let me know if you’d be interested. I think sometimes you get to the point where you’ll try anything. She would love to come and see you. She saw my bacelet and hat😊

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  7. Elise, Every morning when my eyes open, you are in my rosary intentions. May God bless you and your family!!! God’s blessings and my love, Judy Gaiennie

    Sent from my iPhone

    >

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  8. Thinking of you now and everyday, Elise. My rosary prayers are for you. May Mary bring all of our intentions for your perfect healing to her beloved Son, our lord.
    I often pray that God make a miracle of you. How awesome would that be… that we can truly show everyone that God is with us…answering all our prayers for you!
    Have sweet dreams and know we are all praying for you!
    Mel Gassen

    Like

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